tag:blogger.com,1999:blog-7858146912842430070.post686527943820183921..comments2023-05-16T17:27:36.964-04:00Comments on Daily Life with "Hidden" Chronic Illnesses: Daily RoutineDawnhttp://www.blogger.com/profile/00601666734084449256noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7858146912842430070.post-8457653213790794762010-04-14T08:10:25.206-04:002010-04-14T08:10:25.206-04:00Lee Lee -
Thank you - being the breadwinner does ...Lee Lee -<br /><br />Thank you - being the breadwinner does make things very difficult - and while I don't necessarily WANT to maintain that position, realistically there is no other option currently. I do agree that it's hard for even those closest to me to understand how ill I am and that I do appear somewhat normal overall.Dawnhttps://www.blogger.com/profile/00601666734084449256noreply@blogger.comtag:blogger.com,1999:blog-7858146912842430070.post-21123839638864991852010-04-13T19:13:48.266-04:002010-04-13T19:13:48.266-04:00You are truely in an awful spot :( However it may ...You are truely in an awful spot :( However it may not be too late for you, but you really do need to stop and think about it all. Obviously being the bread winner makes things very difficult but if you need to maintain that position within your family then you really do need to make big changes right now. Another week could make all the difference. I know with me it was just half a day that mad ethe difference. I'm sure if I had just stayed home on not gon eto work that final day I would no have fallen over th edge, but I was stupid ...<br />Lastly I wanted to say to you that this really is such an odd thing that happens to the body, it's likely that even the people who are closest to you wil not understand or be able to see just how sick you are. Do not push through just because the people you love and trust don't think you are ill. You cannot expect anyone else to understand, to them you probably don't look all that different to the 'normal' you. Best of luck. xLee Leehttps://www.blogger.com/profile/02614823402670740413noreply@blogger.comtag:blogger.com,1999:blog-7858146912842430070.post-19878822802999274462010-04-13T12:47:40.979-04:002010-04-13T12:47:40.979-04:00Cusp-
Thank you so much for your response. That n...Cusp-<br />Thank you so much for your response. That nagging voice in my head tells me the same things you have said, I know it's true. Thank you for the advice regarding taking some time off and then returning. I am falling fast and I know it. By Thursday of each week, I might as well be a log sitting at my desk, because I have no brain power left. I often catch myself "napping" at stop lights. I know I am in trouble. I truly appreciate the time you took to comment.<br /><br />Shelli-<br /><br />Thank you so much also, falling down the mountain is my biggest fear. I feel like I am dangling on the edge most days to be honest.Dawnhttps://www.blogger.com/profile/00601666734084449256noreply@blogger.comtag:blogger.com,1999:blog-7858146912842430070.post-61522121640878231112010-04-13T12:39:44.885-04:002010-04-13T12:39:44.885-04:00I agree with Cusp. You are at a really critical s...I agree with Cusp. You are at a really critical stage of CFS, and what you do with it now will determine how far you fall down this mountain. The harder you push, the farther you fall. Pacing is the most important and most effective way of treating this disease.Shellihttps://www.blogger.com/profile/03068094486297918345noreply@blogger.comtag:blogger.com,1999:blog-7858146912842430070.post-51138164896117957882010-04-13T12:19:12.261-04:002010-04-13T12:19:12.261-04:00Hi Dawn. Only just found you. I recognise your &...Hi Dawn. Only just found you. I recognise your 'schedule'. It was simiwo disabled to mine when I was diagnosed 9 years ago --- except we had two small children then and wo disabled parents.<br /><br />You HAVE to look after yourself now regardless of what anybody else thinks -- even your husband. It will be hard because you are obviously dedicated, responsible and caring but if you don't take the bull by the horns and reduce your hours drastically and pace you are much more likely to stay poorly: hard to say but it's true. It is always hard to go your own way and stress, in itself, is tiring but it's better than dragging yourself around every day. Read all you can about pacing, change diet and look at oter aspects of yoru environment ---food, chemicals in the home (even perfumes, shampoos, cleaning materials etc )<br /><br />I would advise, if possible, some time off work to recuperate a bit and then, if you feel up to it return to work but at much reduced hours.<br /><br />Do take care of yourselfCusphttps://www.blogger.com/profile/10717783581169397585noreply@blogger.com