About Me

I am a 37 year old female living in the southeast USA.  I reside with my 22 year old daughter, my 19 year old son, my husband of 20 years, 2 dogs and 4 cats.

In 2004 I was diagnosed with Interstial Cystitis (IC), I finally got to the point where I could "manage" my IC symptoms to a level where I could work (most days without major pain), and return to a social life.  Mainly by doing daily bladder instillations and by sticking to a strict low acidic diet. 

Then in October 2009, I came down with the blessed "swine" flu - otherwise, known as H1N1.  This flu was different from any flu in my life, the symptoms were different (more cough and nausea) and the fatigue was EXTREME.  For several months afterwards, I would go through periods (normally rotating daily) of feeling somewhat better, except for the never to go away fatigue, to times when I felt as if I had somehow caught the flu again.  Muscle aches increased, fatigue intensified, daily horrible sore throats, low grade fevers now were a part of my daily life. 

By early January 2010 (when I almost fell asleep driving home from work), I finally decided to go to my primary care doctor.  All the bloodwork was done (very thorough I might add) and of course, 4 days later I received a call from the nurse that "all of my bloodwork looked wonderful".  Well great - I'm "normal" and feel like I've been hit by a Mack Truck every morning.

In February 2010, while seeing my urologist for a follow-up, I mentioned the symptoms I had been having, that all of my bloodwork was normal and he suggested I might have Fibro.  He referred me to a wonderful specialist.  My March 2010, I had my new diagnosis of Chronic Fatigue Immune Defiency Syndrome (CFIDS), a crappy disorder with a crappy name if you ask me. In July 2010 I was also diagnosed with FM.

Comments are always welcome, I am in a brand new world, one that noone would ever wish for.