Monday, November 15, 2010

Climbing out of the Bed

I can't believe how long it's been since I last posted. To be honest, I haven't even turned on the computer this entire time. To say I have crashed, would be an understatement, but I'm still keeping good spirits (most of the time), and still trying.

I have more bad days then good and good days do have an entire new meaning now, being bombarded with disability paperwork and mandated doc appts hasn't helped much either, but it's a fight that must be handled.

I don't read much any longer, books are impossible, but I have found some quite interesting shows on TV - LOL.

All of you are on my mind and I promise to post more as soon as possible.

I think it's important for anyone reading to see how far you can fall - especially when you don't listen to your body and STOP soon enough. You really have no idea, trust me, I never imagined that a bath would be a luxury, that getting dressed was a decision, and that the simple act of fixing a drink could take 30 minutes because you don't remember what you were doing or where anything is. This is not depression, this is a SERIOUS syndrome and eventually your body WILL demand what it needs - one way or the other.

17 comments:

  1. Nice to see you back online, sorry you are doing so poorly ... I am in a really bad spot right now too :( Oh well !

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  2. Sorry to hear how bad things are and that you have the joy of that paperwork every time you actually feel able to do something. Not a good combination, but hopefully it should ease off over time once the initial stuff gets sorted. Good luck with it.

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  3. So pleased you have managed to post again. We were worried about you :O)

    Yes the paperwork is a real pain and the last thing you need atm. As someone else said on their blog ages ago..it's as if being disabled becomes a new job in itself.

    Thinking of you and wishing you strength my dear (*)

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  4. I'm glad to see you are doing a little better. Yes, not paying attention to our bodies can have serious consequences.

    Here's to hoping you feel much better soon!

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  5. Wow, sounds like your body has really gone down hill. Thanks for the warnings about pushing. I've heard of people crashing this badly after a decent period of functioning. So sorry, it really sucks. That and the disability paper work....I remember going through that. I hope you have someone who can help you with it. Keep resting and taking care of yourself. Nice to hear your update.

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  6. How are you doing now, Dawn? Was Christmastime brutal or bearable??

    Hugs, Judy

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  7. Hi Dawn, Hope you are ok, have not forgotten you!

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  8. Interesting blog because reports on this chronic disease such as fibromyalgia. What recomendare to my friends in the Forum of findrxonline because they seek help and you can find it here.

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  9. SO long since you posted. Just hoping things are as OK as poss. Wish you had email address too and sending positive thoughts and love x

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  10. Nobody wants to live in pain and hydrocodone is what can effortlessly get them rid of pain and help leading a smooth life. This drug has been incessantly providing relief from pain and helping in getting off frustrating nagging cough. Cough attacks people mostly during winters and there are people or situation which brings this frustrating cough into being. It corrodes the mood and stands as a bar to execute any work in peace.

    Leonardo Vargas
    FindRxOnline blog

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  11. The most frustrating thing about the health care debate so far is that, as far as I’ve been able to research, no one has actually studied the actual facts behind the two different POVs. Our policy shouldn’t be driven by such diverse “opinions” when one or the other could probably be established as closer to reality. (How many people in the US have what is classified as a “chronic illness”? Of those, what percentages have illnesses that have strong/weak/no/unknown ties to behavior choices? For an otherwise healthy baby/young adult/65-year-old/etc., what are the chances of them developing a chronic condition no matter what lifestyle choices they make? And how much of health care costs go to such things, as compared to one-time random accidents (like car crashes) or to routine care that everyone should expect (like vaccinations and cholesterol checks)?) If anyone could point out such studies to me, I would appreciate it; hopefully they will help me argue more intelligently with my mother the next time we start talking politics.

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  12. What a good topic! I've never seen it addressed, & believe there's merit in the idea that HSP can be part and parcel to PTSD. Thinking back-I had highly critical parents - my mother was a mean person, and her name-calling still stings. Even my ears hurt when she was criticizing me. Ever had your own mother tell you you were ugly? Too sensitive?? She, & others I've encountered through the years like to insult others, and when they show offense, love to say, " You're too sensitive. I was just joking". In the past, I've wished I was more 'thick-skinned', but I can see the blessing in it too - I try to be tactful and carful of the feelings of others, apologize when I'm not. Wouldn't trade it.

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  13. Santa Barbara Chiropractors may counsel fibromyalgia patients about wellness concepts such as nutrition, exercise, changes in lifestyle, and stress management, but do not prescribe drugs or perform surgery.Some Chiropractors specialize in sports injuries, Neurology, Orthopedics, Pediatrics, nutrition, internal disorders, or diagnostic imaging.

    Chiropractors such as Santa Barbara Chiropractor are health care providers which address problems involving the musculoskeletal system particularly the spine and neck. Their aim is to improve the overall spinal health of patients. According to Santa Barbara Chiropractor people suffering from backache and neck pain frequently have an underlying problem with the alignment of the spine or may have muscle damage which prevents the back muscles from providing the correct support. They help realign the spine and relieve muscle tension with the use of various techniques. They can also treat joint problems, muscle spasms and ligament pain. Moreover, they stress the importance of correct posture from sitting, standing, to walking.

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  14. I wanted to let you know about my charity event for National Fibromyalgia Day May 12,2012. Just make a purchase at www.glitzeeglee.com and 50% of all proceeds will go to fibrocoalition.org. I've had fibromyalgia for 7 years. I highly recommend you visit this charity's website. They have helped a lot of people find the root cause of their fibromyalgia. They publish a magazine with great tips and the latest research.

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  15. I am sorry that you are in so much pain. I have fibromyalgia so I understand how debilitating it can be. I found some helpful tips for ways of managing my pain at http://onlineceucredit.com/edu/social-work-ceus-pain. I hope you can find some useful information from it to. I wish you all the best!

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  16. Hi,

    I have a quick question about your blog, do you think you could e-mail me?

    Heather

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  17. Hello,

    For Interstitial Cystitis Pain, join our IC Community http://www.ic-today.com

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