Being diagnosed with interstial cystitis (IC) in 2004 should have prepared me for my future, but now with a new diagnosis of chronic fatigue immune difficiency syndrom (CFIDS) my life has begun to spin out of control.
My friends and family appear to be having difficulity accepting that I am now even "sicker" than before, more difficulity than me to be honest. The daily frustrations are mounting. I am trying the daily dance of working full-time, managing a house (where fortunately everyone is an adult -in theory at least), helping to care for my disabled mother and learning my limits.
Everyone talks about pacing - I ask you - seriously, how do you pace this life?
My symptoms began in early October 2009, and I was diagnosed in March 2010 after having numerous tests etc. to rule out other causes. I am apparently in a fast decline it appears, this blog will document this road I find myself on now, and the decisions I am sure I will be faced to make.