Wednesday, May 19, 2010

Today's Med .......... Is a Bust

Well, that didn't take long. I absolutely HATE how med sensitive I am. Again, I have ALWAYS been med sensitive, my entire life, now with CFS it is MUCH worse.

So how did that 25 mg of Nuvagil go? Five hours into it, my face is burning and I feel like I have bugs crawling all over me. I do not (thankfully) have a rash, however I am sure I will not be continuing this.

I have placed a call to my doctor. Do you have any idea how much I do NOT want to tell him AGAIN that I am experiencing atypical reactions on a low dose?

Oh well, I'll give my body a couple of days to recover and then we will move to the next round of med trial.


  1. Oh no! I am really sorry to hear that. How crappy for you :(

    I saw my Dr today and he is finally ready to start me on D-Ribose which is a kind of carb/sugar that your body needs to produce energy. People like us do not have enough naturally so in theory it should really help. The biggest problem I am having now is find someone who stocks it. It's not widely used so the 2 pharmacies I have called so far haven't even heard of it. LOL ....

    Oh such exciting lives we lead!!! I hope you get through this week without doing to much damage .... take care. x

  2. Lee Lee -

    Thanks - yeah our bodies are not fun at all - LOL. I understand the problem with finding items stocked in pharmacies also. Is the D-Ribose something you can order online, or obtain from a health/nutrition store?

    Good luck on your mission - LOL.

    Take Care