A comment from my previous post has me doing some self-reflecting. I think it's very possible that I've been hoping against everything else that something else is going on other than CFIDS. The Lupus thought process fed that sense of false hope and I really began to think that something else could be going on.
It makes me sad that I feel this way, I apologize to all those that are trying to get this more recognized and accepted for hoping something else was going on. Could it be the disbelief, the lack of support, the lack of good medical options that caused me to want something else? Probably a combination of all.
So now I must come back to acceptance. I have CFIDS (CFS/ME) and it's time to learn how to manage it - AGAIN. There is no time for false hope, there is only time to find away to make my life as full as possible and to help my body stay as healthy as possible.
When my husband says I can't see the positive - I disagree. I think it's just my form of acceptance. I do believe that every day doesn't have to feel as badly as today, I do believe that it's possible for me to improve. However, I don't believe I will ever have a drink again, I don't believe I will ever carelessly not listen to my body signals, I do believe I will always have to watch my energy levels. Is that really negative?
I see my doc again next week. We are going to look at supplements and alternative therapies - since I obviously am so med sensitive. This is a route I am more comfortable with, and I believe this route will teach me how to LISTEN to my body more.