Thank you everyone for all of your comments and support. Truly it is a breathe of fresh air to communicate with people that get it and I can tell in your messages that you truly care and are trying to help me from falling far - it really means so much more than you know.
I also, got a pleasant surprise from my uncle who is apparently very knowledgeable about CFS/ME so it's been nice to have an additional family member "get it".
I went to bed at 8pm last night - and slept for 12 hours - it seems like I could sleep for weeks right now to be honest. I'm at work today - but came in late (had to get more bloodwork drawn) and am not staying all day. I'm going to tell them effective Monday to start paying me hourly and stop burning up all of my paid time off trying to make up my hours. Step #1 in my eyes. I am definately being more realistic now after this last "episode" that has now lasted several weeks and appears to still be getting worse (but I'm surviving at least).
For the most part my family has been understanding about no commitments - my daughter was a bit disappointed about something she wanted to do this weekend but quickly realized how it was out of my hands (have I mentioned lately how grateful I am for my adult children and their support and understanding), my mom has been wonderful about it and is totally supporting my decisions (she would also like to see me take time off work), but there are still some in my family that just don't get it and I'm accepting that they just may not get it. This is the first time, I can truly say I feel like I'm putting myself first.
It's still difficult with my husband - but I can't change him or the situation - so my newest goal is to stop apologizing and making excuses for what I can't do - it's ridiculous and I know it.