Monday, June 28, 2010

Alot to Catch Up On

On Monday afternoon my "big" boss sent me home for the rest of the week. I literally spent the entire time (Tues - Sun) doing extremely minimal activity and mainly rotating between the couch and the bed. I do not feel better.

I am back at work today, but not sure how it's going to go. I agree that at this point I should probably just go out of work and forget about working from home but I am trying to work with my employer also. I worked from home 1/2 a day on Tuesday and it was horrible - not restful at all - and a mistake.

My "big" boss (not my immediate supervisor) is a retired physician from a major university hospital. He is arranging for me to see an infectious disease specialist to "make sure" there is nothing else going on.

I don't think he believes in CFS to be honest, but he can see that I am obviously sick. Either this will be a life learning experience for him, or they will find something else wrong.

Meanwhile, I feel like I should try to to work with them as much as possible - although, I realize that this was not what I asked for in my message to him, but I'm taking a wait and see approach - FOR THE MOMENT.

I'm discouraged that I feel no better after resting all last week, if I'm 100% honest, I'm still getting worse. I am actually quite sick at this point. The realization of this is really hard to ignore.

My current doc is now out of the country (in the UK) for an entire month, so I'm a bit "stuck" anyway I suppose.............

I just wish I would stabilize at least............


  1. So sorry to hear that you are still in decline ... you seem to be following the same pattern I did ... I just kept pushing and each time I would say to myself well I will cut back a bit more and then it will be ok but each time I got sicker until I could no longer walk. It's so hard to accept what's happening that you just keep pushing yourself. I think the infectous disease guy is worth visiting. Obviously it is pretty clear you have CFS but if there is even a small chance it's something else then you want to know that now!! Try not to feel discouraged that you don't feel better after a week of rest. You body is most likely quite damaged at this point .... it's gonna take some time to come back up to a 'base line'. I know that once I completely crashed and couldn't walk it took about 6 weeks before I felt any better at all ... but at that time I did feel better and was able to take care of myself. That was my baseline, I have not improved past that point but I did bounce back a little, so don't feel discouraged ... you need good quality rest and lots of it, not just a week!!
    Take care, all of us online friends know exactly how you feel and if we are making it through then so will you!! xx

  2. Oh, Dawn, sending lots of hugs your way! I can't say it any better than Lee Lee has. One week, sadly, is not enough. You need to give yourself more time (and much more rest!). Take care of yourself!

  3. Yep...right with Lee Lee. Same here. You really need quality rest and no cheating if possible. Your body (and mind)is in shock and needs all the peace it can get.

    Also agree about seeing the other doctor because there may be something else going on and you need to know

    All thinking of you, and sending good thoughts and prayers ((*))