This morning was ROUGH (you all know what I mean) - somehow I only ended up being 15 minutes late to work - so I consider that a victory.
My "big" boss still does not think it's possible I have CFS or Fibro - because I'm such a hard worker and so motivated. Anyone else laughing out there in blogsphere?
I believe we were all hard working, highly motivated, and probably juggled far too many balls before illness hit. That's why I get so frustrated when someone makes off-handed comments without knowledge. Don't judge me because I'm ill, how about you take some time to do some RESEARCH. Most of us have had to completely change our lives around, some have lost wonderful (high paying) careers, some have lost spouses or significant others, some have even lost all their possessions. We try everything we can to get better: medications, expensive supplements, alternative therapies, what more does the general population expect?
Speaking of research - I have tried to stay out of the whole XMVR virus talk because I truly don't know enough about it to form an opinion. But can someone tell me WHY the results are not being published? How can science move ahead when study results are being kept away? I don't know if it's XMVR or something else, but I believe that every single ounce of research available (since we all know there is so little) should be available. Maybe then, people (like my boss - who is a retired MD by the way) would recognize that this is real - and happens to people "like me" every day.