I slept until 1pm yesterday.........and was barely functional the remainder of the day. The mid-week crash hit. I was hoping for a quiet day at work today, but no such luck so far. I'm already exhausted and have only been here about 2 hours. I have so much to get done at work, did not plan on having bosses in today, and am having a minor freak-out. It's so hard to shut up that type A personality, it's a constant battle still I'm afraid.
This is another reason why I know it's better for me (healthwise) to exit before much longer, I can't handle my own expectations.
I have not heard about the neuro consult, but am trying to sneak out of here today, long enough to go have the Lyme screening done. Perhaps, I can squeeze it in with some work-related errands. (Which will certainly not help with my fatigue level today I'm sure).
Tomorrow, is going to be another VERY busy day at work, so I'm trying to just remember to breathe and realize I can only do as much as I can do, so many hard lessons to learn.
I'm working through reading a book: "50 Things You Should Know About The Chronic Fatigue Syndrome" by Neenyah Ostrom. This book was printed in 1992. The saddest thing......it's the same information we have now. I'm dismayed. Is it really possible that we are no further than we were 18 years ago???
Subscribe to:
Post Comments (Atom)
I'm afraid it is really. I was diag. about 10 years ago buthad my suspicions years before and the books I read then (which I still have) have roughly the same info as new ones. Every time there's a new book about M.E. it just 'reinvents the wheel' really...same old stuff dressed up in new clothes. It's because nobody cared about 'us' I think ...though that is slowly changing now I believe...and about time.
ReplyDeleteCusp -
ReplyDeleteI hope it's changing, I really do, for all of us and future cases.
I have read a few books, all of them old ones and I have to agree .. most of the info is still current sadly. Anything more recent that I have found out has been through my own research and via my Dr who seems to know EVERYTHING. I am sooo lucky to have found him.
ReplyDeleteI hope you get through the next couple of days with work etc. xx
It is incredibly sad that the information that was current in 1992 is exactly the same today. Sad and infuriating!
ReplyDeleteThanks for sharing that book. I'm going to order it as I haven't read that one yet.
I hope tomorrow goes a little better. It is so hard when you have a full days work. Maybe a nice soak in the tub would be a great idea after work!
Hang in there! You are not alone! :-)
Oh, expectations. I've always tried to live with the motto that keeping expectations low leads to a happier life because you get disappointed less often! Heh. But what do you do when you can hardly meet your most basic expectations for life?? =/
ReplyDeleteDolceVita -
ReplyDeleteThat's a wonderful question, expectations must be lowered, but I don't think any of us ever realized how much......