Tuesday, August 10, 2010

Taking It Moment by Moment

I did speak to my husband last night. I did tell him that my doctor said I was ALREADY disabled but I'm just pushing my body by working right now. I also told him that my doctor is concerned about me driving (due to the fact I often close my eyes at stoplights, am not as careful as I should be and often have great difficulity keeping my eyes open while driving). I rode to the gas station last night with my daughter and he made her drive (LOL).

He said we will work it out, and let's just see what the neuro consult shows........so he has all of the information, and I can tell it is hitting him now. I hope he will try to do some research or talk to someone, meanwhile I have made an appt. with my counselor (haven't seen her in probably 2 months) just to unload some of my fears etc.

I'm not ready to say that my husband is completely supportive at this point, but I've done what I can and I needed to know that.

I really appreciate everyone's comments, as Lee Lee mentioned, I would TRULY be lost in all of this if it weren't for all of you. (I have quite a bit of empathy for those that were diagnosed pre-internet). This is such a "lonely" disease already, to be able to find some understanding is a relief.

Don't get me wrong, I'm still nervous, I'm still worried, and I'm still hopeful that at some point I will be able to return to work. While it may be too late for me to come back to this job, I do believe deep down that means there may be something else out there for me.

I'm taking it moment by moment and just doing the best I can in the meanwhile.


  1. Dawn - Thanks for dropping by my blog and leaving a comment. I really appreciated that! I added you to my list of blogs I read and will add a link of your blog on my blog.

    I'm a little behind the 8 ball with what is going on with you and your family, but what I read sounds reasonable to me.

    I can't imagine being married and trying to navigate all of this.

    I also totally agree with you statement about having this illness and the power of the internet! I find so much compassion, help, encouragement, and love here. Amazes me on a daily basis.

    I hope and pray that you and your husband will be able to find the right path in the days ahead

  2. Well, well done my dear. Took courage to tell your husband but you're there now and you did it. What he does with the information ..you have no control over so let it go. Does sound like he may be getting to grips with the reality of the situation.

    We're all still here (*)

  3. Yah! Sounds to me like you have turned a corner and so has your husband. Getting your head around it all is just a big as the illness itself, so well done girl :)